The
neurosurgeon’s grim scenarios kept ringing in my ears and I yearned for
prognostic clarity. The further we
ventured the more unclear the potentialities became. Death was a tragic but discernible and
largely expected outcome in Carolie’s circumstances.
Survival from such a traumatic sequence of
medical ‘events’ was far less likely and threw up unpredictable outcomes. More than once, medical specialists told us
she should be dead. Any scenario beyond
that was against the odds and unmapped.
I was astounded by how little is known about such brain trauma and
recovery. The studies are sparse and
focussed on surprisingly limited parameters.
There is clinical research on the pathology of stroke - a common cause
of death and morbidity in our society - but understanding of the ‘ecology’ of
stroke survival appears in its infancy.
As
a minor category of stroke, the geography of the sub-arachnoid haemorrhage
landscape is barely discernible. All of
the documentation available during the journey dealt with the generic condition
of ‘stroke’.
When I later asked a neurosurgeon about therapies to investigate and maximize brain plasticity and cognitive re-alignment his reply, unsurprisingly with hindsight, was that such concerns fall outside his discipline’s recovery parameters. They have various categories of survivor, with most remaining within the boundaries of permanent incapacity and semi-institutionalization.
When I later asked a neurosurgeon about therapies to investigate and maximize brain plasticity and cognitive re-alignment his reply, unsurprisingly with hindsight, was that such concerns fall outside his discipline’s recovery parameters. They have various categories of survivor, with most remaining within the boundaries of permanent incapacity and semi-institutionalization.
A fortunate
few return home to resume a semblance of ‘normal’ life, but the prospects for
complete cognitive rehabilitation are slim.
Physical rehabilitation strategies are well developed and targeted to
the specific needs of stroke survivors. Knowledge of therapies to aid cognitive
recovery from brain damage is imprecise; paths to healing largely inchoate.
To be continued....
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